About this organisation
Summary of activities
1. Operation of a digital ( audio/visual) based Patient Support Program that assists rare cancer patients identify resources such as: 1. Information on their specific rare cancer 2. Centres of clinical expertise in their specific cancer 3. Sources of financial support 4. Relevant clinical trials 5. Treatment access schemes available via the pharmaceutical industry 6. Provide timely and specific information on potentially high impact other disease areas ( e.g. Health) 2. Development of a web portal that provides the above information through the RCA website 3. Continuous representation and advocacy to Federal and State Governments to improve research and treatment for Australians living with rare cancers. 4. Partnerships with major research institutions to advance research into rare cancers in Australia 5. Building and supporting global alliances of like minded organisations to advance the cause of all cancer patients. 6. Provides crucial support and advocacy for individuals affected by rare cancers, assisting them to navigate specialised care and access to treatments. 7. Fosters a supportive community, empowering patients and their families with resources and information to navigate their unique cancer journey.
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Outcomes
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Programs and activities
Name: Patient Support Programme
URL: https://www.rarecancers.org.au/page/66/your-cancer-journey
Classification: Cancers (Health > Diseases and conditions > Cancers)
Beneficiaries:- Aboriginal and Torres Strait Islander people
- Adults - aged 25 to under 65
- Adults - aged 65 and over
- Children - aged 6 to under 15
- Early childhood - aged under 6
- Families
- Females
- Financially disadvantaged people
- General community in Australia
- Males
- People from a culturally and linguistically diverse background (or people from a CALD background)
- People in rural/regional/remote communities
- People with chronic illness (including terminal illness)
- Unemployed persons
- Youth - 15 to under 25
Finances
What is this?
This graph shows how much revenue (money in) and expenses (money out) the charity has had each year over the last few years. Charities have many sources of revenue, such as donations, government grants, and services they sell to the public. Similarly, expenses are everything that allows the charity to run, from paying staff to rent.
What should I be looking for?
First off, this graph gives a general indication of how big the charity is - charities range in size from tiny (budgets of less than $100,000) to enormous (budgets more than $100 million). You're also looking for variability - if the charity's revenue and expenses are jumping up and down from year to year, make sure there's a good reason for it.
Unlike companies, charities and not-for-profits aren't on a mission to make money. However, if they spend more than they receive, eventually they will go into too much debt and run into trouble. As a very general rule, you want revenue to be slightly above expenses. If expenses is reliably above revenue, the charity is losing money. If revenue is much larger than expenses, it means the charity might not be using its resources effectively. It isn't always that simple, however, and there's a lot of reasons a charity might not follow this pattern. They might be saving up for a big purchase or campaign, or they might have made a big one-off payment. If you're worried, always look at the annual and financial reports to understand why the charity is making the decisions it is.
What is this?
If a charity receives more money than it spends, that's a surplus (in business, it would be called profit). If it spends more than it receives, that's a deficit. This chart shows surpluses and deficits for the charity over the last few years.
What should I be looking for?
Unlike companies, charities and not-for-profits aren't on a mission to make money. However, if they spend more than they receive, eventually they will go into too much debt and run into trouble. As a very general rule, you want a charity to make a small surplus on average. A deficit means that charity lost money that year, which may indicate poor financial management or just a series of bad circumstances. If the charity always has a huge surplus, it means the charity might not be using its resources effectively. It isn't always that simple, however, and there's a lot of reasons a charity might not follow this pattern. They might be saving up for a big purchase or campaign, or they might have made a big one-off payment. If you're worried, always look at the annual and financial reports to understand why the charity is making the decisions it is.
What is this?
This chart compares the amount the charity receives from various sources, including donations (i.e. money given by the general public or philanthropy), goods and services, government grants, and other sources.
What should I be looking for?
Donations are an important source of revenue for some charities. Others rely more heavily on government funding, or on revenue from other sources. This is an indication of how much they need donors to accomplish their mission. Note that there is no 'good' or 'bad' amount of donations for a charity to have. It might be interesting to look at values over time - are they going up or down? A charity that gets less donations every year may be in trouble.
What is this?
Assets are things that the charity owns that are worth something. This could be anything from a car to investments. Similarly, liabilities are debts or obligations that the charity owes to someone else, like a loan or an agreement to pay for something.
What should I be looking for?
Firstly, in general a charity should have more assets than liabilities. If it doesn't, it implies that the charity might not be able to pay its debts, and you should look very closely at the charity's annual and financial reports to make sure they are taking steps to remedy this. Current assets should generally be above current liabilities - that means the charity can easily pay off the debts that are coming due soon. Beyond that, look for a large stockpile of assets. While a charity should have enough assets to keep it afloat in hard times (a 'buffer') if that stockpile gets too large the charity could be using that money more effectively. As always, if you have concerns check the annual and financial reports.
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